Why Are We Fundraising ?
Young Jemma from Holbury, Hampshire is only 23 years old. She is facing the urgent need for lifesaving neurosurgery.
Sadly over the past 12 years Jemma has become increasingly disabled with rare conditions EDS, Chiari, Craniocervical Instability, Atlantoaxial instability, Subaxial Instability and Cervical Medullary Syndrome caused by brainstem compression. These conditions have left her living at home with her parents & dependent on her wheelchair and crutches. It is heart breaking for us to watch our beautiful young daughter’s health deteriorating very rapidly & have become Jemma’s carers. Jemma can no longer do such simple things that everyone else takes for granted - brushing her hair, having a bath by herself etc.
We, Jemma’s parents, are desperate to fund raise £100,000 to enable Jemma to get specialist Life Saving Neurosurgery with Dr Gilete a highly skilled Neurosurgeon based in Barcelona. Unfortunately, this Complex Neurosurgery is yet to be made available in the UK either privately or through the NHS.
Failure to fundraise the £100,000 urgently needed to secure Jemma’s neurosurgical intervention is not an option that we can even contemplate. Jemma would face a very dim future with possible paralysis or ultimately death caused by brain stem compression!
The operation Jemma needs has helped several people from the UK. Those who have had the same surgery in Barcelona have seen amazing results with a huge improvement in their symptoms. One lady can walk for the first time in years! If it is left untreated for too long the chances of the brain recovering and regaining the functions its lost decreases hence the urgent need for surgery.
If the surgery is successful Jemma wants to set up her own business, drive, help others with fundraising and help drive a change in the way drs treat EDS and related conditions.
Help give Jemma a chance of less pain, more independence and better quality of life.
Please note that we are fundraising for Jemma Life Saving Surgery under the umbrella of Just4Children Registered UK Charity no. 1164437.